Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study
Brandt M, Driemeyer J, Johannsen J, Denecke J, Inhestern L, Bergelt C
BMC PSYCHOL. 2024;12(1):566.

Child-centredness in paediatric magnetic resonance imaging: Information needs and experiences of children requiring magnetic resonance imaging and their parents
Inhestern L, Herrmann J, Schürmann J, Meister R, Nawka M, Mynarek M, Linhart D, Bergelt C
CHILD CARE HLTH DEV. 2024;50(1):e13157.

Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program
Inhestern L, Nasse M, Krauth K, Kandels D, Rutkowski S, Escherich G, Bergelt C
FRONT PEDIATR. 2024;12:1288567.

Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study
Inhestern L, Otto R, Brandt M, Zybarth D, Oheim R, Schüler H, Mir T, Tsiakas K, Dibaj P, Zschüntzsch J, Okun P, Hegenbart U, Sommerburg O, Schramm C, Weiler-Normann C, Härter M, Bergelt C
ORPHANET J RARE DIS. 2024;19(1):197.

Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors
Paul V, Inhestern L, Sigmund D, Winzig J, Rutkowski S, Escherich G, Bergelt C
PEDIATR RES. 2024 [Epub ahead of print].

The needs of families of pediatric cancer survivors: challenges and developments in psychosocial support services
Paul V, Inhestern L, Sigmund D, Winzig J, Rutkowski S, Escherich G, Bergelt C
PEDIATR RES. 2024 [Epub ahead of print].

And what about today? Burden and support needs of adolescent childhood cancer survivors in long-term follow-up care-A qualitative content analysis
Winzig J, Inhestern L, Sigmund D, Paul V, Hail L, Rutkowski S, Escherich G, Bergelt C
CHILD CARE HLTH DEV. 2024;50(1):e13207.

Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis
Winzig J, Inhestern L, Sigmund D, Paul V, Hail L, Rutkowski S, Escherich G, Bergelt C
CANCER MED-US. 2024;13(10):.

Auswirkungen einer Pandemie auf Menschen mit Seltenen Erkrankungen und Empfehlungen zur Aufrechterhaltung von Versorgung und Teilhabe
Zybarth D, Brandt M, Mundlos C, Inhestern L
BUNDESGESUNDHEITSBLA. 2024;67(1):57-65.

Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review
Zybarth D, Inhestern L, Otto R, Bergelt C
HELIYON. 2024;10(19):e38677.

Gesundheitsbezogene Versorgungsforschung im Kindes- und Jugendalter: Ziele, Aktivitäten, Zukunftsperspektiven und Bedeutung für die Sozialpädiatrie
De Bock F, Borusiak P, Inhestern L, Thyen U
MONATSSCHR KINDERH. 2023;171:1092-1099.

Supportive and psychosocial peer-group interventions for children and adolescents of parents with cancer: A systematic review
Geertz W, Frerichs W, Inhestern L, Bergelt C
PATIENT EDUC COUNS. 2023;114(9):107844.

Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy
Inhestern L, Brandt M, Driemeyer J, Denecke J, Johannsen J, Bergelt C
INT J ENV RES PUB HE. 2023;20(7):5360.

Versorgung von Menschen mit Seltenen Erkrankungen: Empfehlungen für eine gelungene intersektorale Zusammenarbeit
Inhestern L, Brandt M, Otto R, Zybarth D, Härter M, Bergelt C
BUNDESGESUNDHEITSBLA. 2023;66(8):940-948.

Exploring the perspectives of cancer patients parenting minor children: A qualitative study on family-centered cancer care experiences
Johannsen L, Frerichs W, Inhestern L, Bergelt C
PATIENT EDUC COUNS. 2023;117(12):.

Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot-study
Johannsen L, Frerichs W, Philipp R, Inhestern L, Bergelt C
PSYCHO-ONCOLOGY. 2023;32(10):1567-1577.

Emotional and behavioral problems of pediatric cancer survivors and their siblings: Concordance of child self-report and parent proxy-report
Paul V, Inhestern L, Winzig J, Nasse M, Krauth K, Rutkowski S, Escherich G, Bergelt C
PSYCHO-ONCOLOGY. 2023;32(8):1248-1256.

Parent-reported health-related quality of life in pediatric childhood cancer survivors and factors associated with poor health-related quality of life in aftercare
Winzig J, Inhestern L, Paul V, Nasse M, Krauth K, Kandels D, Rutkowski S, Escherich G, Bergelt C
QUAL LIFE RES. 2023;32(10):2965-2974.

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study
Zybarth D, Brandt M, Mundlos C, Inhestern L
ORPHANET J RARE DIS. 2023;18(1):154.

Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs
Brandt M, Johannsen L, Inhestern L, Bergelt C
ORPHANET J RARE DIS. 2022;17(1):.

Child- and family-specific communication skills trainings for healthcare professionals caring for families with parental cancer: A systematic review
Frerichs W, Geertz W, Johannsen L, Inhestern L, Bergelt C
PLOS ONE. 2022;17(11):.

Children with cancer and their families after active treatment: analyses of biopsychosocial needs and implications for healthcare - a study protocol
Inhestern L, Paul V, Winzig J, Rutkowski S, Escherich G, Bergelt C
BMJ OPEN. 2022;12(4):e055633.

The impact of cancer on the mental health of patients parenting minor children: A systematic review of the quantitative evidence
Johannsen L, Brandt M, Frerichs W, Inhestern L, Bergelt C
PSYCHO-ONCOLOGY. 2022;31(6):869-878.

Belastungen bei Angehörigen von Krebserkrankten erkennen und versorgen
Johannsen L, Geertz W, Bergelt C, Inhestern L
InFo Hämatologie + Onkologie. 2022;25(6):15-18.

Parental Cancer: Acceptance and Usability of an Information Booklet for Affected Parents
Melchiors L, Geertz W, Inhestern L
FRONT PSYCHOL. 2022;13:.

Fear of progression in parents of childhood cancer survivors: prevalence and associated factors
Peikert M, Inhestern L, Krauth K, Escherich G, Rutkowski S, Kandels D, Schiekiera L, Bergelt C
J CANCER SURVIV. 2022;16(4):823-833.

The Relationship Between Present-Centered Awareness and Attention, Burnout, and Compassion Fatigue in Oncology Health Professionals
Hegel J, Halkett G, Schofield P, Rees C, Heritage B, Suleman S, Inhestern L, Butler T, Fitch M, Breen L
MINDFULNESS. 2021;12(5):1224-1233.

Psychoonkologische Arbeit mit Familien
Inhestern L, Bergelt C
2021. Psychoonkologie. Schulz-Kindermann F (Hrsg.). 2. Aufl. Beltz, 199-212.

Estimates of Prevalence Rates of Cancer Patients With Children and Well-Being in Affected Children: A Systematic Review on Population-Based Findings
Inhestern L, Bultmann J, Johannsen L, Beierlein V, Möller B, Romer G, Koch U, Bergelt C
FRONT PSYCHIATRY. 2021;12:765314.

Families Affected by Parental Cancer: Quality of Life, Impact on Children and Psychosocial Care Needs
Inhestern L, Johannsen L, Bergelt C
FRONT PSYCHIATRY. 2021;12:.

Krebskranke Kinder in der familienorientierten Rehabilitation: Ziele und Veränderung der körperlichen Leistungsfähigkeit
Peikert M, Inhestern L, Krauth K, Bergelt C
REHABILITATION. 2021;60(2):124-131.

Parents' perception of their children's process of reintegration after childhood cancer treatment
Inhestern L, Peikert M, Krauth K, Escherich G, Rutkowski S, Kandels D, Bergelt C
PLOS ONE. 2020;15(10):e0239967.

Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations
Inhestern L, Zybarth D, Otto R, Brandt M, Härter M, Bergelt C
BMJ OPEN. 2020;10(11):e040470.

Assessing Competencies of Healthcare Professionals Caring for Parents With Cancer: The Development of an Innovative Assessment Tool
Johannsen L, Frerichs W, Inhestern L, Bergelt C
PSYCHO-ONCOLOGY. 2020;29(10):1670-1677.

Fear of progression in parents of childhood cancer survivors: A Dyadic data analysis
Peikert M, Inhestern L, Krauth K, Escherich G, Rutkowski S, Kandels D, Bergelt C
PSYCHO-ONCOLOGY. 2020;29(10):1678-1685.

Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany
Peikert M, Inhestern L, Krauth K, Escherich G, Rutkowski S, Kandels D, Bergelt C
BMJ OPEN. 2020;10(3):e033730.

Does a Train-the-Trainer Approach for Enhancing Healthcare Professionals' Skills in Patient Education during Inpatient Medical Rehabilitation Improve Patient Outcomes?
Ullrich A, Inhestern L, Wehrmann J, Raida M, Köhler M, Bergelt C
REHABIL RES PRACT. 2020;2020:.

Process-evaluation and outcome-evaluation of a training programme for healthcare professionals in oncology to enhance their competencies in caring for patients with minor children: a study protocol for a randomised controlled pilot study
Inhestern L, Frerichs W, Johannsen L, Bergelt C
BMJ OPEN. 2019;9(10):e032778.

When a mother has cancer: strains and resources of affected families from the mother's and father's perspective - a qualitative study
Inhestern L, Bergelt C
BMC WOMENS HEALTH. 2018;18(1):72.

Parental cancer: Characteristics of users of child-centred counselling versus individual psycho-oncological treatment
Inhestern L, Geertz W, Schulz-Kindermann F, Bergelt C
PSYCHO-ONCOLOGY. 2018;27(3):955–961.

Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review
Peikert M, Inhestern L, Bergelt C
PLOS ONE. 2018;13(4):e0196151.

Social relationships and physician utilization among older adults - a systematic review
Bremer D, Inhestern L, von dem Knesebeck O
PLOS ONE. 2017;12(9):e0185672.

Anxiety and depression in working-age cancer survivors - a register-based study
Inhestern L, Beierlein V, Bultmann J, Möller B, Romer G, Koch U, Bergelt C
BMC CANCER. 2017;17(1):347.

Belastungen bei Eltern krebskranker Kinder in der familienorientierten Rehabilitation
Inhestern L, Beierlein V, Krauth K, Rolfes U, Schulte T, Berger D, Koch U, Bergelt C
PRAX KINDERPSYCHOL K. 2017;66(3):179-193.

Belastungen und Reha-Ziele von Familien in der pädiatrisch-onkologischen Rehabilitation
Inhestern L, Beierlein V, Krauth K, Schulte T, Berger D, Koch U, Bergelt C
PRAX KINDERPSYCHOL K. 2017;66(3):194-208.

Elterliche Sorgen und psychische Belastung bei krebskranken Eltern mit minderjährigen und jungerwachsenen Kindern
Inhestern L, Bultmann J, Beierlein V, Möller B, Romer G, Koch U, Bergelt C
PSYCHOTHER PSYCH MED. 2017;67(7):279-287.

The role of rehabilitation measures in reintegration of children with brain tumours or leukaemia and their families after completion of cancer treatment - a study protocol
Peikert M, Inhestern L, Bergelt C
BMJ OPEN. 2017;7(8):e014505.

Understanding Parenting Concerns in Cancer Survivors with Minor and Young Adult Children
Inhestern L, Bultmann J, Beierlein V, Möller B, Romer G, Koch U, Bergelt C
J PSYCHOSOM RES. 2016;87:1-6.

Psychometric Properties of the Parenting Concerns Questionnaire (PCQ) in Cancer Survivors with Minor and Young Adult Children
Inhestern L, Bultmann J, Beierlein V, Möller B, Romer G, Muriel A, Moore C, Koch U, Bergelt C
PSYCHO-ONCOLOGY. 2016;25(9):1092-8.

Psychosocial Interventions for Families with Parental Cancer and Barriers and Facilitators to Implementation and Use - A Systematic Review
Inhestern L, Haller A, Wlodarczyk O, Bergelt C
PLOS ONE. 2016;11(6):e0156967.

[Reactive changes in psychological condition and behaviour in children of parents with cancer--results of an epidemiological survey].
Bergelt C, Ernst J, Beierlein V, Inhestern L, Holes S, Möller B, Romer G, Koch U
PRAX KINDERPSYCHOL K. 2012;61(6):378-395.

Letzte Aktualisierung aus dem FIS: 23.12.2024 - 23:35 Uhr